{"id":15197,"date":"2024-05-31T11:46:21","date_gmt":"2024-05-31T11:46:21","guid":{"rendered":"https:\/\/cansearch.ch\/?page_id=15197"},"modified":"2024-05-31T11:46:21","modified_gmt":"2024-05-31T11:46:21","slug":"5-swiss-national-registry-for-pediatric-patients-with-malignant-liver-tumors-swissliverre","status":"publish","type":"page","link":"https:\/\/cansearch.ch\/en\/5-swiss-national-registry-for-pediatric-patients-with-malignant-liver-tumors-swissliverre\/","title":{"rendered":"5.\tSwiss National Registry for Pediatric Patients with Malignant Liver Tumors – SWISSLIVERRE"},"content":{"rendered":"
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<\/a>5.<\/span>         Swiss National Registry for Pediatric Patients with Malignant Liver Tumors – SWISSLIVERRE<\/span><\/strong><\/h2>\n

Hepatic tumors represent the third largest group of pediatric intra-abdominal tumors, after neuroblastoma and renal tumors. They account for approximately 1% of all pediatric tumors and include hepatoblastoma (HB), hepatocellular carcinoma (HCC), unspecified hepatocellular neoplasm (HCN NOS), and undifferentiated embryonal sarcoma of the liver (UESL).<\/p>\n

The development of a national registry for pediatric patients with liver tumors will provide an overview of clinical and epidemiological data, as well as therapeutic strategies and short- and long-term outcomes. We will prospectively collect clinical, biological, radiological, histological, genetic, and molecular pathology data from patients under 18 years of age with liver tumors diagnosed in Switzerland, sourced from the Geneva pediatric biobank, BaHOP. All patients or their legal representatives will be required to sign the consent form. The 9 institutions of the Swiss Pediatric Oncology Group (SPOG); namely Aarau, Bern, Basel, Bellinzona, Geneva, Lausanne, Lucerne, St. Gallen & Zurich; will participate in data collection. We will establish a national tumor board to discuss all cases of liver tumors and develop national recommendations for the management of these patients, based on international recommendations following the results of the PHITT study.<\/p>\n

The protocol will be submitted for approval by the Swiss Ethics Committee (CE) and will be presented to SPOG.<\/p>\n<\/div>

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Qu\u2019apporte cette \u00e9tude aux patients ? <\/span><\/b><\/span><\/em><\/p>\n

Le projet SWISSLIVERRE permet de standardiser les strat\u00e9gies th\u00e9rapeutiques pour les tumeurs h\u00e9patiques en Suisse, en \u00e9tablissant un tumor board national. La collecte d\u2019\u00e9chantillons biologiques et tissulaires dans la BaHOP peut contribuer \u00e0 l\u2019\u00e9valuation de biomarqueurs pronostiques et de biomarqueurs associ\u00e9s \u00e0 la toxicit\u00e9 dans cette population afin d\u2019am\u00e9liorer le pronostic et la qualit\u00e9 de vie de ces patients.<\/span><\/em><\/p>\n<\/div>\n<\/div>\n<\/div><\/div><\/div>

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